“Don’t let anybody tell you ‘you can’t’… … They don’t know you and your heart” -Buddy “B1L” Elias […]
I've been trying to think of one word that describes the SBA conference 2016 that I just recently attended out in Minnesota. One word that can best characterize my feelings toward all the sessions, people and the crucial roles they each of them play in the bigger picture we call āSpina Bifidaā and I havenāt been able to. I believe the SBAās conference theme, āBeyond all limitsā says it all and says a lot. So much! It's hard for me to even gather my thoughts to write this. However, I know that from experiences is how we help others and each of us with Spina Bifida has been given a great responsibility to teach others, without us even realizing that we are. From our lives, doctors learn how to push boundaries and take risk, to help us reach our full potential. Medical professionals work tirelessly since the day we are born, trying to make our lives as rich as possible. And most importantly our families, since day one have been on our side battling every single battle, so we can have a chance to win the war. I canāt express enough the importance my family had and still has in my life. I canāt thank them enough for the long nights, stressful days and sacrifices they have made just so I can be here.Ā There is so much power in that. I truly believe that being born with spina bifida has strengthen my family in every way. It has made us into critical thinkers who always look for solutions. Spina Bifida gave us an attitude of never holding back, always moving forward at all cost and giving up is not an option. Some phrases used [...]
It was such an honor for Jimmy Wheelz to be invited to this years SMA WalkNRoll. It was a great Saturday filled with smiling kids and adults having a good time. Accompanied but Justin Beauchesne pro skater, Jimmy and Justin got to mingle with members of the SMA and network with the many superheros from the Much Foundation. The kids faces said it all, as the superheros from the Much Foundation came dressed to impress in heir most lavish costumes. From Ninja Turtles to Darth Vader, their was indeed something for everyone, from young to old. Can't wait to see what the future holds for Jimmy Wheelz and friends. Thanks to everyone who made the event possible.
WalkNRoll 2015 on Octber 24th was a huge success beating last years grand total of thirty thousand dollars byĀ raising thirty two thousand. It's a great honor for Jimmy Wheelz to be part of this event on so many levels. Not only has the SBA played a major role in Jimmy's life but acts as a consonant resource. It was great to see so many familiarĀ faces and all the new ones. The SBACFL's second year at Water Works park utilizing the round about as the WalkNRoll area. Sponsors sit along the sides with games and treats, waiving to the walknroll families. This year Team Westin raised over $5,000 dollars and were awarded the best team and lead the WalkNroll. It's a team effort with everyone doing their partĀ to bring the second annual Tampa Bay WalkNRoll to life. Until next year. For more information please visitĀ http://sbacentralflorida.org/