Spina Bifida

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WCMX ATHLETE, TONY TORRES, TO COMPETE IN RISE ADAPTIVE SPORTS WCMX WORLD CHAMPIONSHIP

For Immediate Release: March 30, 2017 Contact: Tony Torres, tony@jimmywheelz.com […]

By | March 30th, 2017|Competition, Spina Bifida, WCMX, World Championships|0 Comments

WCMX Florida Clinic – Lakeland 2017

“Don’t let anybody tell you ‘you can’t’… … They don’t know you and your heart” -Buddy “B1L” Elias […]

By | March 11th, 2017|Community, SBACFL, Spina Bifida, WCMX, WCMX Clinics|0 Comments

SBA Conference 2016: Beyond All Limits

I've been trying to think of one word that describes the SBA conference 2016 that I just recently attended out in Minnesota. One word that can best characterize my feelings toward all the sessions, people and the crucial roles they each of them play in the bigger picture we call “Spina Bifida” and I haven’t been able to. I believe the SBA’s conference theme, “Beyond all limits” says it all and says a lot. So much! It's hard for me to even gather my thoughts to write this. However, I know that from experiences is how we help others and each of us with Spina Bifida has been given a great responsibility to teach others, without us even realizing that we are. From our lives, doctors learn how to push boundaries and take risk, to help us reach our full potential. Medical professionals work tirelessly since the day we are born, trying to make our lives as rich as possible. And most importantly our families, since day one have been on our side battling every single battle, so we can have a chance to win the war. I can’t express enough the importance my family had and still has in my life. I can’t thank them enough for the long nights, stressful days and sacrifices they have made just so I can be here.  There is so much power in that. I truly believe that being born with spina bifida has strengthen my family in every way. It has made us into critical thinkers who always look for solutions. Spina Bifida gave us an attitude of never holding back, always moving forward at all cost and giving up is not an option. Some phrases used [...]

By | June 29th, 2016|Community, Conferences, Event, Expos, SBACFL, Spina Bifida|1 Comment

WalkNRoll for Spina Bifida 2015

WalkNRoll 2015 on Octber 24th was a huge success beating last years grand total of thirty thousand dollars by raising thirty two thousand. It's a great honor for Jimmy Wheelz to be part of this event on so many levels. Not only has the SBA played a major role in Jimmy's life but acts as a consonant resource. It was great to see so many familiar faces and all the new ones. The SBACFL's second year at Water Works park utilizing the round about as the WalkNRoll area. Sponsors sit along the sides with games and treats, waiving to the walknroll families. This year Team Westin raised over $5,000 dollars and were awarded the best team and lead the WalkNroll. It's a team effort with everyone doing their part to bring the second annual Tampa Bay WalkNRoll to life. Until next year.   For more information please visit http://sbacentralflorida.org/

By | October 26th, 2015|Community, SBACFL, Spina Bifida|0 Comments

WalkNRoll for Spina Bifida 2015

Jimmy Wheelz LLC, a multimedia company from St. Petersburg, FL, is helping to support the important work of the Spina Bidifa Association of Central Florida for its second year to improve the quality of life for those living with this complex birth defect by participating in the Walk-N-Roll for Spina Bifida. We have decided to help the SBA take steps today for a brighter tomorrow for those living with the challenges caused by this birth defect. We are committed to raising $2,000 to support programs and services for those with Spina Bifida. You can also make a difference by joining our team, Team Jimmy Wheelz, and walking with us, or by donating funds to help me reach our goal. We love to have you join us- either in person or in spirit through your donation- helping this wonderful cause. We are asking each of our friends to consider a tax deductible donation in support of our efforts. Help us by sharing our campaign ans passing out the flyer. Join the Team and help us spread the word! http://bit.ly/1Hs2quz

By | July 14th, 2015|Community, Event, SBACFL, Spina Bifida|0 Comments

Wheel On Up for Spina Bifida

Team Jimmy Wheelz realized “Wheel on up” a fundraiser for the November 8th 2014 WalkNRoll for Spina Bifida. An event like no other to raise funds for the Spina Bifida Association of Central Florida. We spread awareness and raised funds for Spina Bifida and celebrated alongside our friends. Not familiar with Spina Bifida? Spina Bifida is the most commonly occurring complex birth defect in this country affecting over 166,000 individuals. It occurs when the spine of the baby fails to close during the first month of pregnancy, leaving a permanent opening in the spinal column. For those who are born with Spina Bifida, some face no challenges while others may live with conditions such as hydrocephalus (fluid on the brain) and varying degrees of paralysis. The total average lifetime health costs for an infant born with Spina Bifida can exceed $1,000,000. If you want to donate and get involved please visit http://www.walknrollsbacfl.org every bit helps... Thanks

By | November 8th, 2014|Community, Event, Spina Bifida, Videos, WCMX|0 Comments